I had another post scheduled for today, but I couldn't not acknowledge something that happened yesterday...many of you might remember a post I wrote a few months ago about Teddy Fish, a sweet amazing boy who was diagnosed with Menkes (i.e. kinky hair syndrome).
you can read his obituary here) I can't begin to imagine what the Fish family is going through and I hope I never will, but I do know that even though their sweet boy was only on this Earth for a little more than a year, he changed a lot of people's hearts, mine included.
From the moment I saw that infectious smile of his, I was captivated by him, his story, and what his friends and family were doing for Menkes awareness and research. I know there are millions of sick children in this world, but for some reason, I couldn't get Teddy out of my mind and he will forever be an imprint to so many of us.
Last night, I sat in my kitchen as the girls and I ate dinner and just cried. Cried because we are so fortunate to have two healthy children, cried because I want to savor each and every moment with my sweet babies, and cried because I can't understand why things happen the way they do sometimes. Jeff had been out to dinner with clients and when I told him about Teddy passing, he said that I had to remind myself that he was in a much better place and that God is taking care of him now.
I know these next few days, weeks, months, and years will be trying for Teddy's parents/grandparents/friends/extended family, but I hope they know how many people are praying for them and praying for a cure for Menkes.
Thank you Mary and Alex for opening your hearts, and sharing that sweet sweet superhero with all of us...I am forever grateful and I promise you none of us will ever forget your sweet Teddy.
You can read more about Super Teddy and his story here.